BOOKS & ARTICLES
At the age of four, Dr. Lise Deguire suffered third-degree burns on 65% of her body as the result of both maternal and corporate negligence. Against the odds, she lived through the trauma, beginning decades of treatment as a burn survivor...and this is just part of her compelling story
Overcome: Burned, Blinded, and Blessed
June 10, 2007, Carmen Blandin Tarleton's estranged husband broke into her rural Vermont home, beat her with a baseball bat, and doused her with industrial-strength lye. Doctors called it "THE MOST HORRIFIC INJURY A HUMAN BEING COULD SUFFER." Tarleton spent the next three and a half months in a medically induced coma, and when she awoke, it was to an unimaginable reality: she was blind and permanently disfigured, with burns covering more than eighty percent of her body. Her recovery would include months of painful rehab, dozens of surgeries, and total dependence on family, friends, and strangers for physical and financial care. With so much taken away, no one could have anticipated what Tarleton would gain from her experience: an awakening. A purpose. Joy. By sharing her struggles and ultimate victory over catastrophic loss, Tarleton proves that life is a choice-and, in the process, offers a rare glimpse into the best and worst corners of the human heart.
Reason For Living
George Pessotti chronicles his near-death experience from a gasoline explosion in 1979 which resulted in burns over 85% of his body. A passionate advocate for the burn survivor community, George has dedicated his life to supporting those who have experienced the trauma of a burn injury.
BOOKS & ARTICLES
Can You See My Scars?
Can You See My Scars? is a story of trauma, adversity, healing, and recovery. Samuel, a young man about to begin his sophomore year of high school, accepts a job that culminates in a chemical explosion leaving Samuel with severe burns on his face, neck, and arms. The tragic and sudden accident sets Samuel on an unpredictable journey of healing, recovery, and acceptance.
My Life as a Boiled Peanut
On May 30th, 1973, a simple bath turned into a hellish nightmare fo a 17 year old mom and her beautiful 15 month old daughter. Experience the life of a burn survivor through my eyes-a life filled with painful surgeries, life-threatening infections, physical therapy and psychological counseling. Feel my mothers' pain and guilt through her own words as she tries to deal with her own trauma of momentarily leaving her child unattended. Cry tears of joy and inspiration and then cry tears of laughter at my warped sense of humor as I teach you to see the funny side of life. Enjoy the first part of this journey and be inspired to live life to the fullest with each day you are given.
Burn Injury (BURN)
MSKTC and Burn Model System Win Silver Digital Health Award for Video
The Sexuality and Intimacy After Burn Injury video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System, was awarded a Spring 2021 Silver Digital Health Award. This 18-minute video highlights burn survivors and their partners who share their experience navigating sexuality and intimacy after burn injury. It also includes the perspectives of health care professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injury. The Digital Health Awards — from the Health Information Resource Center — recognize high-quality digital health resources for consumers and health professionals. Learn more here.
Burn Model System Researchers Receive ABA Top Papers of the Year in Two Journals
During the 53rd Annual American Burn Association Meeting (ABA2021), editors announced their top papers of the year. Two papers senior-authored by the Boston-Harvard Burn Injury Model System were recognized:
“An examination of follow-up services received by vulnerable populations: A Burn Model System National Database study,” was recognized as one of the top 10 papers of 2020 in the Journal of Burn Care and Research. This study's goal was to assess for differences in long-term occupational or physical therapy (OT/PT) and psychological service use after burn injury in vulnerable populations. View the abstract here.
“Recognizing the long-term sequelae of burns as a chronic medical condition,” was recognized as one of the top 5 most impactful papers in the Journal of the International Society for Burn Injuries. View the abstract here.
Resource Highlight: “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers” Factsheet
The Model Systems Knowledge Translation Center (MSKTC) developed a new factsheet entitled, “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers.” This factsheet aims to provide information about opioid management for adults after they have been discharged from a hospital for treatment of their acute burn injury. This information will help community healthcare providers in their provision of comprehensive care in the setting of a national opioid crisis. The factsheet was developed by researchers from the Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN), University of Washington Medicine Regional Burn Center (Samuel P. Mandell, MD, MPH, FACS), and Pain Institute of Nevada (Katherine D. Travnicek, MD), with support from the MSKTC. The factsheet may be reproduced and distributed freely with appropriate attribution. It is available on the MSKTC website here.