BOOKS & ARTICLES
At the age of four, Dr. Lise Deguire suffered third-degree burns on 65% of her body as the result of both maternal and corporate negligence. Against the odds, she lived through the trauma, beginning decades of treatment as a burn survivor...and this is just part of her compelling story
Overcome: Burned, Blinded, and Blessed
June 10, 2007, Carmen Blandin Tarleton's estranged husband broke into her rural Vermont home, beat her with a baseball bat, and doused her with industrial-strength lye. Doctors called it "THE MOST HORRIFIC INJURY A HUMAN BEING COULD SUFFER." Tarleton spent the next three and a half months in a medically induced coma, and when she awoke, it was to an unimaginable reality: she was blind and permanently disfigured, with burns covering more than eighty percent of her body. Her recovery would include months of painful rehab, dozens of surgeries, and total dependence on family, friends, and strangers for physical and financial care. With so much taken away, no one could have anticipated what Tarleton would gain from her experience: an awakening. A purpose. Joy. By sharing her struggles and ultimate victory over catastrophic loss, Tarleton proves that life is a choice-and, in the process, offers a rare glimpse into the best and worst corners of the human heart.
Reason For Living
George Pessotti chronicles his near-death experience from a gasoline explosion in 1979 which resulted in burns over 85% of his body. A passionate advocate for the burn survivor community, George has dedicated his life to supporting those who have experienced the trauma of a burn injury.
BOOKS & ARTICLES
Can You See My Scars?
Can You See My Scars? is a story of trauma, adversity, healing, and recovery. Samuel, a young man about to begin his sophomore year of high school, accepts a job that culminates in a chemical explosion leaving Samuel with severe burns on his face, neck, and arms. The tragic and sudden accident sets Samuel on an unpredictable journey of healing, recovery, and acceptance.
My Life as a Boiled Peanut
On May 30th, 1973, a simple bath turned into a hellish nightmare fo a 17 year old mom and her beautiful 15 month old daughter. Experience the life of a burn survivor through my eyes-a life filled with painful surgeries, life-threatening infections, physical therapy and psychological counseling. Feel my mothers' pain and guilt through her own words as she tries to deal with her own trauma of momentarily leaving her child unattended. Cry tears of joy and inspiration and then cry tears of laughter at my warped sense of humor as I teach you to see the funny side of life. Enjoy the first part of this journey and be inspired to live life to the fullest with each day you are given.
ANA Recognizes Burn Nursing as New Specialty Nursing Practice
Aug 12th 2020
From ANA Enterprise "Nursing World"
SILVER SPRING, MD – The American Nurses Association (ANA), representing the interests of the nation’s more than 4 million nurses, announces the formal recognition of burn nursing as a nursing specialty.
Burn nursing incorporates best practices to promote health and wellness for all who are impacted by burn injury, including the patient, family, support system, and community. Burn nursing also focuses on prevention of injury and associated illness and participates in community reintegration while advocating for populations at risk. Burn nurses determine their own actions through independent choice within the full scope of nursing practice and engage in interprofessional collaboration to optimize the health and function of individuals affected by burn injury and their families with known or predicted financial burden, physiologic, psychological, or social alterations. Burn nursing actively promotes and conducts research to improve best practices and outcomes.
“The American Nurses Association is excited to officially recognize burn nursing practice as a nursing specialty. This recognition will help highlight the essential role of burn nurses and the function of burn nursing practice across the health care spectrum,” said ANA President, Ernest Grant, PHD, RN, FAAN. “Burn nursing is a challenging and rewarding discipline that demands all of one’s nursing expertise. I am especially enthused about this recognition because I was a burn nurse for over 35 years of my nursing career. This work fulfilled my passion for community service and education, motivating me to also get involved in advocacy work at the state and national level.”
The American Burn Association (ABA), which promotes and supports burn-related research, education, care, rehabilitation, and prevention, is pleased with this important distinction.
“The American Burn Association is honored by ANA's recognition of burn nursing as a specialty,” said ABA Nursing Professional Certification Committee Chair, Gretchen J. Carrougher, MN, RN. “This recognition is a true milestone for our specialty. It acknowledges the required expertise for the many professional nurses who provide specialty burn care through all phases of injury recovery and rehabilitation.”
Burn nurses are specially educated and trained to treat, support, and promote recovery of those sustaining a burn injury. Their care also includes prevention and educational activities. Burn Nursing: Scope and Standards of Practice (2020), an important professional resource, is in production and will be available at www.ameriburn.org in the near future.
ANA is the neutral reviewing body of specialty nursing scope of practice statements and standards of practice, requests for specialty recognition, and more recently affirmation of focused practice competencies.
About the American Nurses Association
The American Nurses Association (ANA) is the premier organization representing the interests of the nation's 4 million registered nurses. ANA advances the nursing profession by fostering high standards of nursing practice, promoting a safe and ethical work environment, bolstering the health and wellness of nurses, and advocating on health care issues that affect nurses and the public. ANA is at the forefront of improving the quality of health care for all. For more information, visit www.nursingworld.org.
Headlines from the MSKTC
Connecting consumers to research-based information in
Traumatic Brain Injury, Spinal Cord Injury, and Burn Injury
Burn Injury (BURN)
MSKTC and Burn Model System Win Bronze Telly Award for Video
The Sexuality and Intimacy After Burn Injury video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System was awarded a 2021 Bronze Telly Award. This 18-minute video highlights burn survivors and their partners who share their experience navigating sexuality and intimacy after burn injury. It also includes the perspectives of health care professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injury. The Telly Awards is the premier award honoring video and television across all screens. Learn more here.
Burn Model System Researchers Publish in Journal of Burn Care & Research
Burn Model System (BMS) researchers published the article, “‘Living well’ after burn injury: Using case reports to illustrate significant contributions from the Burn Model System research program,” in the Journal of Burn Care & Research. This research review describes how 25 years of contributions from the National Institute on Disability, Independent Living, and Rehabilitation Research's (NIDILRR) BMS program has impacted the recovery and lives of individuals with a significant burn injury. Using case reports, unique BMS contributions to patient, recovery were identified and categorized into one of several domains: treatment, assessment measures, sequelae, peer support, employment, and long-term functional outcomes. The case study participants featured in this review identified NIDILRR research contributions as having direct, personal benefits to their recovery. Authors are from the following currently-funded BMS centers: Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN; Kara McMullen, MPH; and Nicole Gibran, MD, FACS), Boston-Harvard Burn Injury Model System (Audrey E. Wolfe, MPH; and Jeffrey Schneider, MD), North Texas Burn Rehabilitation Model System (Radha Holavanahalli, PhD; and Loren Patterson), and Burn Model System Data and Statistical Center (Dagmar Amtmann, PhD) with Diana Tenney, Joseph Yeakley, and Christopher
Madison. View the abstract here.
Burn Model System Researcher Participates in Online Forum: “The Human Cost of Incendiary
Weapons and Shortcomings of International Law”
Jeffrey Schneider, MD, principal investigator for the Boston-Harvard Burn Injury Model System, participated in “The Human Cost of Incendiary Weapons and Shortcomings of International Law,” an online forum hosted by Human Rights Watch (HRW) and Harvard Law School's International Human Rights Clinic. This online event highlighted the horrific human cost of incendiary weapons and the need for a more effective international response. Dr. Schneider discussed the complexities of treating burn injuries and the long-term physical, psychological, cognitive, and social impacts burn injury survivors face. Dr. Schneider and the other presenters drew on their first-hand experiences and professional expertise to detail the humanitarian consequences of incendiary weapons and called on states to strengthen international law regulating their use. Learn more about the event here.
Burn Injury (BURN)
MSKTC and Burn Model System Win Silver Digital Health Award for Video
The Sexuality and Intimacy After Burn Injury video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System, was awarded a Spring 2021 Silver Digital Health Award. This 18-minute video highlights burn survivors and their partners who share their experience navigating sexuality and intimacy after burn injury. It also includes the perspectives of health care professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injury. The Digital Health Awards — from the Health Information Resource Center — recognize high-quality digital health resources for consumers and health professionals. Learn more here.
Burn Model System Researchers Receive ABA Top Papers of the Year in Two Journals
During the 53rd Annual American Burn Association Meeting (ABA2021), editors announced their top papers of the year. Two papers senior-authored by the Boston-Harvard Burn Injury Model System were recognized:
“An examination of follow-up services received by vulnerable populations: A Burn Model System National Database study,” was recognized as one of the top 10 papers of 2020 in the Journal of Burn Care and Research. This study's goal was to assess for differences in long-term occupational or physical therapy (OT/PT) and psychological service use after burn injury in vulnerable populations. View the abstract here.
“Recognizing the long-term sequelae of burns as a chronic medical condition,” was recognized as one of the top 5 most impactful papers in the Journal of the International Society for Burn Injuries. View the abstract here.
Resource Highlight: “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers” Factsheet
The Model Systems Knowledge Translation Center (MSKTC) developed a new factsheet entitled, “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers.” This factsheet aims to provide information about opioid management for adults after they have been discharged from a hospital for treatment of their acute burn injury. This information will help community healthcare providers in their provision of comprehensive care in the setting of a national opioid crisis. The factsheet was developed by researchers from the Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN), University of Washington Medicine Regional Burn Center (Samuel P. Mandell, MD, MPH, FACS), and Pain Institute of Nevada (Katherine D. Travnicek, MD), with support from the MSKTC. The factsheet may be reproduced and distributed freely with appropriate attribution. It is available on the MSKTC website here.