WHAT YOU NEED TO KNOW
Your Road To Recovery
We know about the many questions you have whether you are recently discharged or are well on your way in getting back to your life after a burn. There are many researched fact sheets and videos about burns on both physical and emotional recovery that you may need. Please visit the Marketing Systems Knowledge Translation Center for more information www.msktc.org/burn
Spaulding Tri-Model Systems Webinar: Traumatic Injuries as Chronic Conditions
Burn Survivors and Family/Friends are Cordially Invited
Purpose: To discuss the changing view of brain, spinal cord, and burn injury from an event that occurs at a moment in time to a chronic condition that evolves across the lifespan. To explore the need for long-term management of these injuries across the continuum of care. Case illustrations will be included. To understand the prevalence of complex chronic conditions following traumatic brain injury, spinal cord injury, or burn injury.
Keynote Speaker: Michael Choo, MD, MBA, Chief Medical Officer, Senior Vice President, Paradigm
Discussants: Drs. Giacino, Zafonte, Schneider (Project Directors)
Registration Link: https://partners.zoom.us/webinar/register/WN_b81ihqygSoqM7Nw2RXvXWA
ROBERT CHELSEA'S FACE TRANSPLANT DOCUMENTARIES
See burn survivor and face transplant recipient, Robert Chelsea’s amazing journey.
Headlines from the MSKTC
Connecting consumers to research-based information in
Traumatic Brain Injury, Spinal Cord Injury, and Burn Injury
Burn Injury (BURN)
MSKTC and Burn Model System Win Bronze Telly Award for Video
The Sexuality and Intimacy After Burn Injury video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System was awarded a 2021 Bronze Telly Award. This 18-minute video highlights burn survivors and their partners who share their experience navigating sexuality and intimacy after burn injury. It also includes the perspectives of health care professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injury. The Telly Awards is the premier award honoring video and television across all screens. Learn more here.
Burn Model System Researchers Publish in Journal of Burn Care & Research
Burn Model System (BMS) researchers published the article, “‘Living well’ after burn injury: Using case reports to illustrate significant contributions from the Burn Model System research program,” in the Journal of Burn Care & Research. This research review describes how 25 years of contributions from the National Institute on Disability, Independent Living, and Rehabilitation Research's (NIDILRR) BMS program has impacted the recovery and lives of individuals with a significant burn injury. Using case reports, unique BMS contributions to patient, recovery were identified and categorized into one of several domains: treatment, assessment measures, sequelae, peer support, employment, and long-term functional outcomes. The case study participants featured in this review identified NIDILRR research contributions as having direct, personal benefits to their recovery. Authors are from the following currently-funded BMS centers: Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN; Kara McMullen, MPH; and Nicole Gibran, MD, FACS), Boston-Harvard Burn Injury Model System (Audrey E. Wolfe, MPH; and Jeffrey Schneider, MD), North Texas Burn Rehabilitation Model System (Radha Holavanahalli, PhD; and Loren Patterson), and Burn Model System Data and Statistical Center (Dagmar Amtmann, PhD) with Diana Tenney, Joseph Yeakley, and Christopher
Madison. View the abstract here.
Burn Model System Researcher Participates in Online Forum: “The Human Cost of Incendiary
Weapons and Shortcomings of International Law”
Jeffrey Schneider, MD, principal investigator for the Boston-Harvard Burn Injury Model System, participated in “The Human Cost of Incendiary Weapons and Shortcomings of International Law,” an online forum hosted by Human Rights Watch (HRW) and Harvard Law School's International Human Rights Clinic. This online event highlighted the horrific human cost of incendiary weapons and the need for a more effective international response. Dr. Schneider discussed the complexities of treating burn injuries and the long-term physical, psychological, cognitive, and social impacts burn injury survivors face. Dr. Schneider and the other presenters drew on their first-hand experiences and professional expertise to detail the humanitarian consequences of incendiary weapons and called on states to strengthen international law regulating their use. Learn more about the event here.
Burn Injury (BURN)
MSKTC and Burn Model System Win Silver Digital Health Award for Video
The Sexuality and Intimacy After Burn Injury video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System, was awarded a Spring 2021 Silver Digital Health Award. This 18-minute video highlights burn survivors and their partners who share their experience navigating sexuality and intimacy after burn injury. It also includes the perspectives of health care professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injury. The Digital Health Awards — from the Health Information Resource Center — recognize high-quality digital health resources for consumers and health professionals. Learn more here.
Burn Model System Researchers Receive ABA Top Papers of the Year in Two Journals
During the 53rd Annual American Burn Association Meeting (ABA2021), editors announced their top papers of the year. Two papers senior-authored by the Boston-Harvard Burn Injury Model System were recognized:
“An examination of follow-up services received by vulnerable populations: A Burn Model System National Database study,” was recognized as one of the top 10 papers of 2020 in the Journal of Burn Care and Research. This study's goal was to assess for differences in long-term occupational or physical therapy (OT/PT) and psychological service use after burn injury in vulnerable populations. View the abstract here.
“Recognizing the long-term sequelae of burns as a chronic medical condition,” was recognized as one of the top 5 most impactful papers in the Journal of the International Society for Burn Injuries. View the abstract here.
Resource Highlight: “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers” Factsheet
The Model Systems Knowledge Translation Center (MSKTC) developed a new factsheet entitled, “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers.” This factsheet aims to provide information about opioid management for adults after they have been discharged from a hospital for treatment of their acute burn injury. This information will help community healthcare providers in their provision of comprehensive care in the setting of a national opioid crisis. The factsheet was developed by researchers from the Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN), University of Washington Medicine Regional Burn Center (Samuel P. Mandell, MD, MPH, FACS), and Pain Institute of Nevada (Katherine D. Travnicek, MD), with support from the MSKTC. The factsheet may be reproduced and distributed freely with appropriate attribution. It is available on the MSKTC website here.