BSONE Peer Support Group
Resources after discharge is a topic that needs much more discovery but we are starting out with what we have hoping, if you have resources or recommendations you will help us add to our lists and organizations.
Resources includes the following:
The Boston-Harvard Burn Injury Model System (BHBIMS) is one of four Burn Model Systems funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and dedicated to improving the lives of burn survivors. BHBIMS strives to provide the highest level of comprehensive burn care, beginning at the time of injury and extending through rehabilitation and eventual re-entry into community life. BHBIMS is also committed to conducting rigorous research, with a specific focus on the long-term functional and psychosocial outcomes of burn injury.
BHBIMS is a collaboration of Spaulding Rehabilitation Hospital, Massachusetts General Hospital, Shriners Hospitals for Children – Boston, Brigham and Women’s Hospital, Harvard Medical School, and the Boston University School of Public Health.
Eligibility Benefits and Career Retraining
The Massachusetts Rehabilitation Commission (MRC) helps individuals with disabilities to live and work independently. MRC is responsible for Vocational Rehabilitation, Community Living and eligibility determination for the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) federal benefits programs. https://www.mass.gov/orgs/massachusetts-rehabilitation-commission
MA Housing Resources
“The following housing information is from various sources and BSONE is not
related to any of the state or private resources, nor have they been
MetroWest Center for Independent Living https://mwcil.org/
New England ADA https://www.newenglandada.org/independent-living-centers
BCIL (Boston) https://bostoncil.org/
Northeast Arc https://ne-arc.org/
The Boston Home (Harmon Apartments) https://www.liveharmonapts.com/home
Some services available in the building like PT, etc, but not like a care-model facility.
The information provided on this webpage is for general informational purposes only. By providing this information, our organization is not providing any endorsement, views, or advice on the part of BSONE. BSONE does not have the resources to provide recommendations on this webpage and recommends you conduct your own research and investigation.
Specialized New England Counselors:
Licensed in Massachusetts: Dr. Susan Gray. Private Practice website: www.integrativepsychology.com for more information. Individuals (not families or couples)
If you are being seen at Spaulding for your care, you can have your clinician refer you to Dr. Gray (there may be a waitlist). Patients only (not family members). For Dr. Gray’s private practice, no in-network insurance but can provide superbills and other resources for possible reimbursement if you have out-of-network benefits. Call for Additional Information: 339-707-5236
Licensed in CT: Deborah Gaynor, LMFT, CADC, Burn Survivor: Offering individual, couples, family sessions, and group therapy. Primary orientation is person-centered and strengths-based. Specializing in ADHD, Addiction, Alcohol Use, Anxiety, Coping Skills, Depression, Divorce, Drug Abuse, Parenting, School Issues, Self-Harming, Sexual Abuse, Substance Use, coping with disfigurement. Call for additional information at 203-660-0450.
If you have suggestions for a counselor in your area please let us know by using the “Contact Us” form.
HELP OUT WITH RESEARCH
Building Bridges...Crossing Them Together
Advocacy comes in many forms...from testifying at the statehouse to letter campaigns to burn prevention.
Advocating for patients when they have no voice and no other support
Encouraging family members to be strong advocates...explaining things that only a burn survivor has been through on their recovery journey
We are a strong voice for you.
BSONE works with many other organizations like Boston Fire Fighters Burn Foundation, Boston-Harvard Burn Injury Model Systems, NFPA, American Burn Association Face Equality International and Phoenix Society for Burn Survivors to ensure your voice is heard through us. If you are interested in becoming active as an advocate contact us through this website.
Advocacy Update, December 2020 from the ABA
Congress Passes Portable Fuel
Container Safety Act
The Portable Fuel Container Safety Act of 2019 (H.R. 806/S.1640) establishes standards for installing flame arrestors on portable fuel containers to prevent serious burn injuries. The ABA has advocated for passage of this bill at the National Leadership Conferences for the past four years. Originally introduced in 2016 by Congressman Mike Thompson (D-CA), the bill is a direct result of years of advocacy efforts from the ABA and other members of the burn community.
This bill was included in the Fiscal Year 2021 appropriations omnibus bill passed on December 21, 2020.
In addition, the appropriations omnibus approved by Congress included $10 million in continued funding for the Military Burn Research Program (MBRP) for Fiscal Year 2021, marking the second consecutive year of $10 million in funding for peer-reviewed burn research. This funding would not have been possible without sustained advocacy by ABA members, ensuring continued support for the treatment of serious burn injuries among service members.