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Bookshelf

God Never Moved:  A Couples Journey Through Fire To Life: A couple since 2001 and sober for four years through a deep spirituality via AA and their church, in 2010 Diana and Jerry would have their secure healthy lives explode on one surprisingly warm early spring day when a backyard cleanup turned into a fiery tragedy. Burned over 90% of her body, at fifty-four Diana was given by doctors a less-than-zero percent chance of survival. Worse, they said it was a minus-forty percent chance. And if she did survive, she would never walk again, nor feed herself, and would require 24/7 at-home nursing care. Jerry sustained 10% burns trying to put out the flames on Diana, mostly the palms of his hands. For that first seesaw year he made it his primary purpose to ensure that no one would give up on Diana -- from the medical professionals to Diana herself, regardless the length and depth of the medically- induced comas, the countless surgeries, and the deadly infections.  It would be more than 400 days before Diana would return home and walk into that backyard . . . . without the use of a cane. Years of further surgeries and extensive physical therapy would follow, as well as a new calling and passion, advocating for burn survivors nationwide. Scarred physically and traumatized emotionally, Diana and Jerry fought, adjusted, and prevailed, not allowing the adversity to destroy them spiritually. It is that strength and optimism that they wish to impart to others by sharing their story, in the hope that it will give assurances to catastrophic accident survivors and their families that they too, like Diana and Jerry, can beat odds of minus-forty percent

Against All Odds: An extraordinary story of faith and healing in the face of tragedy. In Against All Odds, NFL agent, Certified Public Accountant, husband, and father Anthony Razzano delivers an inspiring tale of resilience and perseverance in the face of almost unimaginable hardship. Caught in a catastrophic fire when he was only twelve years old, the author defied the odds―and the grim prognosis offered by his doctors―to become the starting outside linebacker for the New Castle Red Hurricanes under legendary coach Lindy Lauro. You’ll read about how the young Razzano endured months of grueling rehabilitation, 43 surgeries, 134 blood transfusions, and years of physical therapy only to emerge even stronger on the other side. The book offers: The transformational narrative of the author’s almost unbelievable story of tragedy and endurance A beacon of hope to the millions of children, parents, and athletes moving through their own journeys Fuel for your own faith and spirit as you encounter and withstand life’s ordinary and extraordinary challenges A singular and awe-inspiring exploration of one boy’s successful attempt to persevere through nearly unbearable burdens, Against All Odds is an inspirational and transformative story you won’t be able to put down.

Flashback Girl: 2020 Nautilus Book Award for Memoir, Gold; 2021 Next Generation Indie Book Award for Memoir, Finalist: At the age of four, Dr. Lise Deguire suffered third-degree burns on 65% of her body as the result of both maternal and corporate negligence. Against the odds, she lived through the trauma, beginning decades of treatment as a burn survivor. Some chapters of this gripping journey focus on early events, including the story of the fire, her years of painful surgeries in the hospital, social isolation and bullying. Other chapters focus on her adult life, such as her struggles to find romantic love, being a parent, and her work as a clinical psychologist. Dr. Deguire recounts her childhood with two narcissistic parents and their futile struggles to find happiness.She tells the tragic story of her family, which includes artistic genius, stark neglect, and four suicides. Most importantly, she explains her long but ultimately triumphant path towards love, health, and life satisfaction. The voice of Flashback Girl is warm and engaging. Despite the seriousness of the subject, the tone of the book is positive and humorous, without self-pity. The aim is to inspire those who suffer to keep pushing on. If the author can make it, despite the tremendous odds against her, there is hope for all. 

Overcome: Burned, Blinded, and Blessed: Bronze medal winner of the 2013 Independent Publisher Book Awards in the Inspirational/Spiritual category! On June 10, 2007, Carmen Blandin Tarleton’s estranged husband broke into her rural Vermont home, beat her with a baseball bat, and doused her with industrial-strength lye. Doctors called it “THE MOST HORRIFIC INJURY A HUMAN BEING COULD SUFFER.” Tarleton spent the next three and a half months in a medically induced coma, and when she awoke, it was to an unimaginable reality: she was blind and permanently disfigured, with burns covering more than eighty percent of her body. Her recovery would include months of painful rehab, dozens of surgeries, and total dependence on family, friends, and strangers for physical and financial care. With so much taken away, no one could have anticipated what Tarleton would gain from her experience: an awakening. A purpose. Joy. By sharing her struggles and ultimate victory over catastrophic loss, Tarleton proves that life is a choice—and, in the process, offers a rare glimpse into the best and worst corners of the human heart.

Reason For Living: A Burn Survivor's Story of Hope and Rebirth: A life can change in an instant. That's the lesson George Pessotti brings home to readers in this inspiring, gripping true-life story of the fire that nearly killed him. The fire altered nearly every aspect of his life, including his already shaky marriage. George's odds of survival were tiny, but he fought back with the same determination that had made him a superstar salesman. With courage and candor laced with unflagging good humor, George Pessotti takes readers deep inside life in a hospital burn unit. There, people struggle not just to cheat death but also to come to grips with the horror that happens when flesh meets fire. But ultimately, this is much more than a story of courage and survival. It's a love story, told in an unusually frank and heartwarming manner. Nearly robbed of his life, George found his reason for living when he found love in his life.

Can You See My Scars? Can You See My Scars? is a story of trauma, adversity, healing, and recovery. Samuel, a young man about to begin his sophomore year of high school, accepts a job that culminates in a chemical explosion leaving Samuel with severe burns on his face, neck, and arms. The tragic and sudden accident sets Samuel on an unpredictable journey of healing, recovery, and acceptance.

Articles

MSKTC and Burn Model System Win Silver Digital Health Award for VideoThe "Sexuality and Intimacy After Burn Injury" video, produced by the Model Systems Knowledge Translation Center (MSKTC) in collaboration with researchers and individuals with the North Texas Burn Rehabilitation Model System, was awarded the Spring 2021 Silver Digital Health Award. This 18-minute video highlights burn survivors and their partners who share their experiences navigating sexuality and intimacy after burn injuries. It also includes the perspectives of healthcare professionals who explain the importance of openly discussing physical and emotional components related to sexuality and intimacy after burn injuries. The Digital Health Awards, from the Health Information Resource Center, recognize high-quality digital health resources for consumers and health professionals. Learn more [here](insert link).Burn Model System Researchers Receive ABA Top Papers of the Year in Two Journals During the 53rd Annual American Burn Association Meeting (ABA2021), editors announced their top papers of the year. Two papers senior-authored by the Boston-Harvard Burn Injury Model System were recognized:“An examination of follow-up services received by vulnerable populations: A Burn Model System National Database study,” was recognized as one of the top 10 papers of 2020 in the Journal of Burn Care and Research. This study's goal was to assess differences in long-term occupational or physical therapy (OT/PT) and psychological service use after burn injuries in vulnerable populations. View the abstract [here](insert link).“Recognizing the long-term sequelae of burns as a chronic medical condition,” was recognized as one of the top 5 most impactful papers in the Journal of the International Society for Burn Injuries. View the abstract [here](insert link).Resource Highlight: “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers” FactsheetThe Model Systems Knowledge Translation Center (MSKTC) developed a new fact sheet entitled, “Outpatient Opioid Management for Adult Burn Survivors: Update for Community Providers.” This factsheet aims to provide information about opioid management for adults after they have been discharged from a hospital for treatment of their acute burn injuries. This information will help community healthcare providers in their provision of comprehensive care in the setting of a national opioid crisis. The factsheet was developed by researchers from the Northwest Regional Burn Model System (Gretchen J. Carrougher, MN, RN), University of Washington Medicine Regional Burn Center (Samuel P. Mandell, MD, MPH, FACS), and Pain Institute of Nevada (Katherine D. Travnicek, MD), with support from the MSKTC. The factsheet may be reproduced and distributed freely with appropriate attribution. It is available on the MSKTC website Home | MSKTC

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